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Why Fatigue Can Persist Long After Breast Cancer Surgery?

Why Fatigue Can Persist Long After Breast Cancer Surgery?

Breast cancer is one of the most common forms of cancer worldwide. For some people diagnosed with breast cancer, surgery, such as a mastectomy or lumpectomy, may be recommended as part of their treatment. While surgery can be an important step in treating the disease, recovery does not end when the operation is over. 

Have you recently had breast cancer surgery, or do you have surgery coming up and are trying to understand what recovery might look like? It can help to know what to expect once the operation is over, the incision begins to heal, and your body starts to adapt to its new reality.

As anything else with cancer, recovery also does not always (or ever) follow a clear timeline. For some, the exhaustion that accompanies treatment can linger long after surgery is over. A person may look well on the outside while still struggling to get through an ordinary day. Even months after treatment, fatigue can affect work, relationships, exercise, concentration, and the small routines that once felt effortless. 

Medical information can explain what to expect during recovery, but hearing how other women experienced it can help you feel less alone in the process. Every breast cancer journey is different, and personal stories can offer a glimpse into the realities that may not always be captured by a typical recovery timeline. The experiences shared by women in the Our Cancer Stories community show how differently people can respond to treatment, manage fatigue, and find their way back to everyday life. 

When do treatments take a toll on the body? 

Breast cancer surgery places significant demands on the body. Healing requires energy, while pain, changes in mobility, disrupted sleep, and the emotional strain of a cancer diagnosis can all make recovery more difficult. Depending on the individual diagnosis, breast cancer treatment may also involve radiation, chemotherapy, hormone therapy, targeted therapy, or a combination of approaches. Each can contribute to fatigue in different ways. The National Cancer Institute notes that fatigue can be caused not only by cancer and its treatments, but also by factors such as pain, sleep problems, stress, nutrition, and other medical conditions. For women who undergo several treatments, it can be difficult to separate “post-surgery tiredness” from the broader effects of cancer treatment.

For breast cancer survivor Emily, fatigue became one of the most noticeable parts of this adjustment. After being diagnosed with stage 1 breast cancer, she underwent a breast-conserving lumpectomy and lymphadenectomy, followed by radiation and hormone therapy. 

Alongside other post-treatment symptoms like skin soreness, and tenderness, Emily experienced significant fatigue. She describes how it affected not only how she felt physically, but what she was able to do.

“My fatigue meant that I was able to do less and needed to rest more.”

She reduced her working hours and found that she no longer had the capacity for social activities. “Everything I did was about self-care and coping,” she explains. “I had no capacity for social activities, I reduced my working hours, my life became smaller and single-minded.”

One of the most difficult things about cancer-related fatigue can be how invisible it is. Someone may appear to have returned to normal while privately struggling to work a full day, exercise, socialise, or concentrate. Fatigue can affect physical energy, but it can also influence mood, memory and attention.

For Emily, that smaller life also created space to notice things she might previously have overlooked. 

“If cancer has gifted me anything, it is the ability to find pleasure in the tiniest moments.”

Why can fatigue continue after treatment?

There is no single explanation for persistent cancer-related fatigue. For some people, the effects of treatment itself may play a role. Radiation and chemotherapy can place substantial demands on the body, while hormone therapies used in breast cancer treatment can bring their own side effects. Pain, sleep disruption, emotional distress, reduced physical activity, and other health problems can also contribute.

Fatigue can also persist well beyond the end of active treatment. According to the National Cancer Institute, some people experience fatigue for months or years after treatment. In one longitudinal study of people with stage I–III breast cancer, more than 30% reported severe global fatigue at one, two, and four years after diagnosis.

How can women’s approaches to recovery look different?

For some women, the experience of breast cancer becomes a reason to rethink aspects of their lifestyle. Changes in nutrition, exercise, alcohol consumption, sleep, or other daily habits can become part of how they cope with treatment and take an active role in their recovery.

Two breast cancer patients, Aalia and Angie, shared that improving their nutrition became an important part of life after breast cancer. Rather than simply returning to their previous routines, they used the experience as an opportunity to pay closer attention to what they were eating and make healthier choices part of their everyday lives.

For Aalia, taking control of her recovery also meant becoming more informed and seeking support from others. She encourages other women to connect with people who have gone through similar experiences, learn about their cancer and treatment options, and seek professional support when needed. 

Angie also spoke about making changes to her relationship with alcohol. After her diagnosis, she focused on getting her drinking habits under control, making another lifestyle change that gave her a greater sense of control over her health and recovery.

Eliza's experience offers a useful contrast. After her stage 2 breast cancer diagnosis, she underwent a lumpectomy, radiation, and hormone therapy and experienced joint and bone pain alongside her treatment, but she did not feel the need to completely overhaul her lifestyle.

“The treatment was overwhelming enough,” she explains.

Instead, Eliza focused on managing her symptoms, spending time with her children, and maintaining a sense of normality. Her approach is just as important to recognise. Recovery does not always have to involve a transformation. Sometimes, getting through treatment and preserving the parts of everyday life that matter to you is enough.

Together, these experiences show that there is no universal blueprint for recovery. Some women may find that changing their habits gives them a sense of control after diagnosis. Others may have neither the energy nor the desire to make major changes. What matters is finding an approach that feels realistic and supportive for your own circumstances.

Recovery can take different forms; trust yourself and your healthcare team

Breast cancer recovery does not follow a single timeline, and there is no one right way to navigate it. Some women may find that changing their routines, seeking support, or becoming more informed helps them regain a sense of control, while others may simply need time to rest, heal, and return to the things that matter to them. What matters is recognising that recovery continues beyond the operating room. If fatigue or other symptoms continue to affect your everyday life, give your body time, pay attention to what it is telling you, and speak to your healthcare team when something does not feel right. Recovery is about finding what helps you move forward, one step at a time.


Writer: Polya Genova

This article was created in collaboration with Our Cancer Stories and is only intended for educational purposes.

The experiences shared through Our Cancer Stories highlight that living with cancer is about far more than diagnoses, treatments, and medical terminology. It is also about navigating the practical and emotional realities of everyday life like adapting to changes in the body and finding ways to maintain comfort, independence, and a sense of self throughout treatment and recovery. 



Bibliography: 

National Cancer Institute. (2024, September 20). Cancer fatigue. National Institutes of Health. https://www.cancer.gov/about-cancer/treatment/side-effects/fatigue 

Avis, N. E., O’Connell, N. S., Mihalko, S. L., et al. (2026). Long-term fatigue after treatment for breast cancer. JAMA Network Open, 9(8), e2629862. https://doi.org/10.1001/jamanetworkopen.2026.29862

Tao, L., Lv, J., Zhong, T., et al. (2024). Effects of sleep disturbance, cancer-related fatigue, and psychological distress on breast cancer patients’ quality of life: A prospective longitudinal observational study. Scientific Reports, 14, 8632. https://doi.org/10.1038/s41598-024-59214-0  

Schaab, M., Wijlens, K. A. E., & Bode, C. (2023). Psychological coping factors associated with breast cancer-related fatigue: A systematic review of recent evidence for stages 0 to III. Clinical Breast Cancer, 23(7), e401–e411. https://doi.org/10.1016/j.clbc.2023.06.005

 

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